News

Healthy Parent Carers

Updates on the Healthy Parent Carers Programme- links to the website

 

Ankle-foot orthosis prescription monitoring in young children with cerebral palsy paper published

How to do better for families in the next emergency- New paper published

The Reset Study publishes its findings- how can services be better for families with disabled children in another emergency situation? You can read the paper here.

Equitable access for parent carers to HPC- new paper published

This paper is fascinating reading. Phill and Caomhan have been interviewing participants and facilitators of the Healthy Parent Carers Programme to hear their experiences and discuss how it can be made more accessible to parent carers from socially and ethnically diverse groups. There's also the HPC Equity Study Plain English Summary  if you prefer a quick read.

New Healthy Parent Carers research paper published

Phill, Caomhan and Ola have headed this up. They've been interviewing participants on the Healthy Parent Carers Programme.

PenCRU team at European Academy Childhood Disability Conference in Bruges

Improving continence Survey results published

Latest on the ICoN study

Javiera celebrates

Congrats to our latest PhD success.

Family Faculty trip to the Circus

See the photos!

Parents and Physios engagement paper published by Phill

Phill Harniess, part of the Healthy Parent Carers team has published as paper from his other role as a physiotherapist.

Occupational Therapy in Schools paper published

Javiera's paper is published.

Highest score for Eileen's research!

Eileen publishes her paper and gets the highest score for her MSc research.

Healthy Parent Carers Implementation Study Paper Published

Congratulations to Alice and Gretchen!

New Paper on Cerebral Palsy Research

Read our latest publication

PenCRU team in Slovenia

European Academy of Childhood Disability Conference 2023

Spring Newsletter 2023

Meet our new researchers

Phill and Caomhán join the team

New Publications out

Read our latest published papers

Winter Newsletter 2022

with a Party invitation 

Family Faculty Fun Day September 2022

See the photos

Summer Newsletter 2022 

H‌ealthy Parent Carers is going national

Spring Newsletter 2022

Enter our Spot the Difference Easter competition!

Winter newsletter now out

Send us your photos for our website and win a £20 shopping voucher!

Healthy Parent Carers plain language summary now available

With help from members of our Family Faculty we have produced a plain language summary.

Cerebral Visual Impairment paper published

In collaboration with colleagues in Bristol we have published a paper on paediatric Cerebral Visual Impairment (CVI).

Healthy Parent Carers Feasibility Trial Paper Published

Healthy Parent Carer researchers Jenny Lloyd, Gretchen Bjornstad and Aleksandra Borek have had their paper published in the BMJ Open Journal.

Healthy Parent Carers paper published

Healthy Parent Carers paper published‌

Summer newsletter now out

Don't forget to enter the competition on the back page!

FEEDS Study paper published

FEEDS paper published

New member of PenCRU team

New member of PenCRU team

Hospital Communications Paper Published

Communication with disabled children on hospital wards research

Healthy Parent Carers at National level conference

Healthy Parent Carers at National level conference

Listen to Kate's story

One of our Family Faculty members, Kate, tells us how the Healthy Parent Carer Programme changed her life.

PenCRU Annual Report 2020 now available

PenCRU Annual Report 2020 now available

Meet our new Family Involvement Coordinator

Meet our new Family Involvement Coordinator

Goodbyes and Hellos

‌Goodbyes and Hellos

Christmas 2020 Newsletter published

Don't forget to enter the competition on the back page!

Winter 2020 Newsletter published

Check out our latest newsletter! 

Another publication from our CHOICE research on measuring core outcomes for children with epilepsy

Another publication from our CHOICE research on measuring core outcomes for children with epilepsy

PenCRU Annual report 2019

We are pleased to announce the publication of the  PenCRU Annual Report 2019

New member of PenCRU team!

New member of PenCRU team!

New publication from our epilepsy research programme

Review of measures of children's health‐related quality of lif